You Man the Island and the Cocaine and the Elegant Stars

Pill regimen, November 2023. Drugs used to be fun!

Sorry to jump around on the cancer story. I guess I spoiled the outcome…

Anyway, the Summer of 2022 was pretty good. I assumed the indeterminate scan results would work themselves out and I’d be good to go in the Fall. I quickly got back in shape on the bike and focused on our new living arrangement, which while frustrating at times (two 50-year old men don’t change habits too quickly), was going pretty well.

We went to the beach in September, a nice tradition we had started before COVID. I had 6-month scans just before we left and felt good about it. My husband was traveling so I was solo for a few days, working and taking the dogs to the beach. Life was good.

Then an email popped-up that I had test results. The scans. I opted not to wait until the call with the oncologist to look at the results. I read the synopsis and everything around me closed in and went silent. It was back and it was back in my abdomen and again in my chest.

I went into panic mode. I googled just about everything possible and figured that I was not long for the world. That my chances of making it past a year were slim to none. It was dark. Dr. Google is never an optimist.

The call with the doctor made things a bit better. He said “You still present well,” meaning, you’re not on death’s door and you’re in fairly good shape. I was resigned to a bone marrow transplant and the agony that would entail. “Well, I don’t think that’s necessary.,” he said. “There is a new genetic modification we can do on your t-cells which programs them to fight cancer cells. We extract them, program them, then re-introduce them to your body. It’s highly effective and there’s minimal risk.”

Hell yeah! Sign me up.

The two months between that call and admission were a complete mind-fuck, though. I had discomfort in my abdomen which I was convinced was the tumor expanding and taking over. We avoided the subject and went to Idaho to mountain bike and took a long weekend in California wine country. But inside, I was as anxious as I’ve ever been. I remember being on the plane, doubled over, thinking this was my last good trip. When we got back from Sonoma, I basically begged for “bridge therapy,” a dose or two of chemo to get me to treatment. The doctor agreed and I steeled myself for whatever was next. I was admitted the day after Christmas.

CAR T-Cell Therapy was also pretty easy for me. The danger is Immune Cell Associated Neurotoxicity (ICANS) which is your body releasing cytokines in defense of what it thinks are foreign t-cells. It manifests as flu-like symptoms and can affect cognition and motor skills. It can also, in untreated cases, be fatal, so they keep you in the hospital for a week to monitor all that. I passed with flying colors…until the day I got home. I crashed and burned ( 103-degree fever) and had to limp into the hospital for fluids and blood work. But that was it. Within a couple weeks, I felt great and was back to living my life. Cancer seemed manageable.

Then we had post CAR-T scans at 3 months. There had been little change in tumor size. The therapy failed. I was one of the 35% who don’t come through successfully.

The only option was an allogenic (donor) stem cell transplant preceded by a rough summer of really strong chemo to kill all the cancer (and hopefully not me).

Shit got real when my oncologist passed me on to the stem cell specialist. I had met the doctor during the first rounds of chemo and argued with him about having to have a anti-blood clot shot in my abdomen. There was a bad taste in my mouth but after the first meeting, I found him to be easy going, smart, relatable, and most importantly, able to manage my need to know everything about everything.

I pulled the trigger on the transplant Memorial Day weekend, 2023. We were in Vermont to get married, which felt very much like a shotgun wedding but with death as the motivator.

I’ll never forget being parked at the side of the road and talking through with the doctor what lay ahead. Heavy chemo as soon as you get back. More scans. Genetic testing. Heavier chemo and full body radiation just prior to transplant. Chemo afterwards and no immune system. A month in the hospital. A shit ton of pills. And then it might not work.

He closed the conversation with, “One more thing. If you can wait a week or two, there’s a new bivalent antibody treatment we’d like to use instead of chemo to get you in remission prior to transplant. The FDA just approved it and we can prescribe it starting Thursday, June 1. It shows great promise. You’d be our first patient.”

Why not? There was nothing left to lose. Less chemo? A simple shot, once a week, I could do that. Bring it.


Fortunate Son

Me, without cancer. 12/15/25

One of the “fun” things about blood cancer is that it’s everywhere — all throughout the body. With lymphoma, think Russian Rulette but with lymph nodes: maybe it manifests, maybe it doesn’t. Maybe the lymph node is in your neck, maybe it’s deep in your gut where you can’t feel anything. Maybe you’ll be sick, maybe you won’t.

So, after failing two treatments and having the the entire blood-making apparatus (bone marrow/immune system) replaced, for me, annual PET scans are a bit nerve-wracking. Is it still lurking? What’s that discomfort in my abdomen? Are my blood counts off because of meds or cancer? I’ve had bad scans and high Deauville scores before and they’re difficult to see past.

But I’m here to tell you that you can get past the diagnosis. You can get past the fear. You can get past the treatment that makes you feel worse than the disease. You can overcome the most soul-crushing disappointments imaginable.

One of my favorite Winston Churchill quotes is “If you’re going through hell, keep going.”

Indeed.


Magpie to the Morning

Sunrise 9/26, Piedmont Park, Atlanta, Georgia

In the Spring of 2021, I had an umbilical hernia that needed repair. I got a referral to the surgeon, did my pre-appointment and didn’t make it past eight as I counted backwards from 10.

I woke up and the doctor was sitting beside me.

“Did everything go OK?” I asked.

“Yes, as far as the surgery goes. But while I was in there, I found a large neoplastic mass in your abdomen. Probably a lymphoma. You’re scheduled for a CT scan next week.”

And with that, we were off to the cancer races!

I got busy, as I do, and had the scans, a biopsy, bloodwork and fought my way to the front of the line with the oncologist I wanted. In 6 short weeks, we cleaned out the basement, Shane moved in, sold his house and I started chemo. Not just any chemo, but the R-EPOCH regimen, a fun little mixture of chemos, steroids and antibiotics. Treatment was six 96-hour drips, requiring me to be admitted for five days every third week.

All of that is intimidating and a pain in the ass. Scary even. Then, when you learn that Diffuse Larger B-Cell Lymphoma is always categorized as Stage IV, the enormity of the task confronting you becomes clear.

But I did it. I packed my bag every third Monday and scheduled around my time on the Winship Cancer tower’s ninth floor, reserved for special chemos and bone marrow transplants – not quite boy-in-the-bubble stuff, but close (there were two rooms for that kind of isolation).

I tolerated the drugs fairly well with only a passing moment of nausea after the fifth cycle. My hair fell out in clumps. I became fatigued. But otherwise, I was relatively unscathed. I maintained my weight. I ate what I wanted. I missed a bad wave of COVID. I made my stays into little breaks and enjoyed my mornings listening to new music and walking the “circuit.” I never threw up. No mouth sores, no diarrhea, nada.

Except for my vision. During the first two chemo cycles, I was given a spinal column injection of methatrexate, a small dose designed to prevent the cancer from crossing the blood/brain barrier. My optic nerves became inflamed and I have permanent visual degradation in about 50% of my right eye and 15% of the left. Toxic optic neuropathy for those following along.

I had another PET scan in March, 2022 and it came back relatively clear, enough so that the oncologist told me “we’ll declare you cancer free when you come for your 6-month repeat scan.”


I Feel Good in the Skin that I’m In

My friend said to me at lunch today, “How long have we known each other? We met in what, 1988? I mean, think of all the iterations we’ve been through.” I left with that thought turning over in my head. Friendships like this one are like being in the same skin. You spend more than half your lives together, living and going through everything that entails. And I mean everything. And still, you meet up for lunch 37 years after you first met, it’s all changed and yet nothing has changed. It’s completely comfortable, safe and known.

It’s been a shitty few weeks for both of us, but we’ve been there for each other. Like always really.


Rusted, Rotted, Falling Apart

Rear of House with Flowers, near Morgan Springs, Alabama, 1984, William Christenberry.

I think I was about 50 when things started to go South. Fresh off two really amazing summers in Provincetown, I was desperately underemployed and couldn’t seem to find a job. At least not one in corporate America, like I had. My parents were beginning to exhibit signs of decline; I watched my Mother go through DTs after surgery to replace a hip. I was single and not happy about it. I abused alcohol and drugs and was not happy about that, either. The partying had lost its fun and had an edge. Mondays were hard.

I was lost and it was my fault, for whatever reason.

Like I said last post, a lot has happened. I found my groove professionally. The work came and I enjoyed it and it led to bigger and better things. After a BIG bender one weekend, I started dating my husband. I rode my ass off on the bike and got into primo shape. I helped my folks navigate their way into an easier living situation. On many levels, I was happy and healthy.

But it wasn’t the same as the golden years, more than a decade when it was just me – only one person to care for and limitless possibility. Mom and Dad were self-sufficient and seemingly enjoying their retirement. Money was assuured and health taken for granted. There was endless fun and new friends and adventures. Yep, not much responsibility. It was indeed fine. My friends were in the same boat and boy, did we celebrate.

I’m not a pessimist nor am I a negative person. But I’m 60 and life has changed. I realized today, as the world of those I love was crashing down around us, that this is another transitional stage. If there’s any solace or hope, I guess it’s the promise of the unknown and what comes next. It’s so fucking interesting. And normal. And natural, this thing called life.

Bring it, let’s do it.


…And, we’re back

Magnolia, Fifth Street, May 2025

I’ve been toying with the idea of writing more for myself. Believe it or not, I’m tired of writing about Donald-fucking-J. Trump. Everything I’ve written here is true and there really isn’t much more to add except the loss of our Democracy. Yeah, that.

I’m good though. The last four years have been quite interesting. Definitely not the fun, careless, crazy AKAFrankGreen years, but good nonetheless.

Oh, and I’m cancer-free. And married. And 60. How did this happen?


Turn, Turn, Turn

Well, I was right.

Two indictments, one extremely serious and seemingly unbeatable.

And the moron continues to show no remorse, no sense of purpose other than to serve (and enrich) himself. Me, me, me, me!

Have fun in prison, motherfucker.


It’s Tragedy

Inauguration Day is perhaps the most special in American civic life. This day is the culmination of the original intent of our democracy, an expression of the will of the people in choosing their representative government. It is historic each and every time it happens. It is a day in which the victor and the defeated put aside results in the interest of the future, of the common good.

Loser acknowledges winner.

And importantly, winner acknowledges loser.

Today, Donald Trump willfully chose to remove himself from the dais. He chose not be part of history, not to be part of the legacy of America. Not surprising, his choice was altogether selfish: He abdicated involvement in the interest of himself.

And so it is with Trump. His selfishness knows no bounds. His concern for himself is without equal. We’ve known this for as long as we’ve known Trump. We allowed it because it was citizen Trump, not candidate or President Trump.

Five years ago, the selfishness of Donald Trump did not abate, it only grew as he took office. His disregard for the law, his willful disdain for courtesy, process and protocol, his casual trashing of science, his cruel use of the scapegoat, and indeed, his malicious manipulation of truth all find their source in his unquenchable thirst for himself.

Like contagion, his selfishness spread without limit: Politics. Diplomacy. Art. Sport. Education. Science. Religion. Hyper local matters such as zoning, voting, clean water and air. Even the personal choices of the colors of the clothing we wear were tainted with his stain. Left vs right. Rural vs urban. Me vs you. Us vs them. Red vs blue.

A year ago selfishness blossomed into full tragedy when he so nonchalantly brushed-off the threat of an unknown respiratory virus spreading like wildfire in another highly industrialized, densely populated, economically essential, extremely mobile population. Tragedy most plainly manifested itself in the the agonizing, unnecessary, lonely deaths of thousands of his fellow Americans. And once again, selfishly, he singularly avoided their fate because of his privilege.

He failed to sooth or even recognize the wounds of 400 years of shackles and whips. Not once did he pause to honor the newly dead. He aligned with enemies and dealt in lies. He created chaos as a sort of shield, thinking it would obfuscate the truth. He marched across a tear-gassed street to a house of God brandishing an upside-down Bible in the name of peace. All for himself. All for Donald. All for show. Never for us.

Selfishness begets some things. Tragedy, others: Truth subverted. 400,000 dead. Legions of followers, blindly voting against their own interests. Millions convinced of a false theft. Thousands marching to disrupt what they hold most precious. Hundreds arrested. Lives disrupted. Careers ruined. Five killed. All because of his narcissistic, ongoing rally cry.

All for him.

All because he could not, and cannot, place others before himself. Us. His country.

History will not be kind to him. His followers — lied to, conned, taken advantage of — will be lost, wounded, imprisoned and violent. He committed all of this knowingly. Scores of Americans dead, not at the hand of an enemy, but by this President’s willful neglect and unconscionable ego!

And this, this is the tragedy of Donald Trump.

May he rot in Hell. And may God Bless America.


Young, Gifted and Black

I’m amazed that Black people have not burned this country down to the ground. White America has had its knee on their necks since the day they were stolen from their homes and shipped a world away.

Yet Black Americans keep going. They keep trying. They forgive. They find a way. I’m bewildered at the patience and the strength and the grace.

Yesterday was the latest insult. The angry white mob marches down those same DC streets where Black protesters were gassed. They march right up and in to the Capitol, unfettered, for the most part, in their attempt to hijack Democracy.

And meanwhile, outside my door, in my neighborhood, an alternate, smarter tack is taken. A move to actually strengthen Democracy. A movement that creates real, lasting change and achieves real, lasting power. A generations-long effort that makes America a better nation.

I’m ashamed that those achievements yesterday were once again overshadowed by the knees of ignorant white people.

Congratulations, Black America. Congratulations Stacey Abrams. Congratulations Raphael Warnock. Congratulations thousands of African-Americans doing the decidedly unglamorous work in rural Georgia. Your success is beyond overdue. You deserve it. We have a lot to learn from you.


Fuck and Run

Usually, I’m not one given to reflecting on the past year and my hopes, fears, ambitions and dreams for the New Year.

However, this year was exceptional. Yeah, you know what I’m talking about. This year. This motherfucking year of all years.

2020 gave like no other. Hard, no lube. Not even a post-coital cuddle.

Shall we?

  • Lost my job
  • Cancelled a dream vacation
  • Lost my best friend
  • Locked down my life
  • Cancelled a charity event near and dear to my heart
  • Witnessed half my nation go berserk
  • Counted along as hundreds of thousands died
  • Watched the planet boil
  • Confronted the mortality of my parents

But, as per usual, I’m an eternal optimist. In the Navy, we often called what I fear my situation is, “The Fly on Shit Syndrome.” Fly is on a turd but he’s happy ’cause he don’t know no better. Might be me. Might not. Seems cute. Glass half full and all that jazz. Right?

So, without further adieu, the Silver Linings on the Shitbag™:

  • Picked-up interesting and challenging work immediately
  • Lost weight
  • Continued riding
  • Told truths to a dying man
  • Heard truths from a dying man
  • Confronted my own prejudices
  • Understood others a bit more clearly
  • Cooked more and better
  • Created more and better
  • Stayed healthy
  • Loved more
  • Strengthened my primary relationships
  • Witnessed movements
  • Fried more chicken
  • Thought more clearly
  • Voted no fewer than 6 times
  • Gained confidence
  • Drank more booze (fuck you, I deserved it)

Like that fly, I end the year hopeful. I can’t say the same about 2019’s end so here’s to trending the right way.

Peace and Happy New Year!


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